Our son, Adrayn, had his second seizure today... well, as far as I know it's his second. This was also the day that my Mother-in-law had purchased tickets for Jeremy, myself and my two amazing step kids to see "A Christmas Carol" at the Guthrie. After plenty of rest and cuddles, Adrayn did get back to his old ways, so we made the call to keep with our plans and see the play that was so generously gifted to us (with a cell phone in my sweaty hand the whole while), and left the wee ones in my Mother-in-law's very capable hands.
I have seen this movie, and smaller production of this play before... however, this time it resonated with me more than ever. My little Tiny Tim... my little Adrayn. I watched Tiny Tim at the dinner table with his family... he was such a positive soul , creating smiles all around. Then, again later as they carried his miniature casket through the town with sullen looks... and lastly, when Scrooge snapped out if his greedy, lonesome trance and they said Tiny Tim would live and grow to do many wonderful things... and I cried... no, I balled... my little Tiny Tim... my Adrayn.
Being a parent isn't an easy task... if I could go back in time and re-do it all, of course I would... but before doing so I would breathe the air deeply... the air, free of heartache... that only being a parent, no... only that loving someone with all that you are, can bring...
Yes, being a parent brings much joy, but the heartache is almost unbearable at times.... times like these.
Please love your little ones... let them know you love them endlessly... say it daily, hourly... I will never breathe air again like I once did, and that is okay, but if you can... please take a big breath for me.
We have an EEG on January 2nd... we hope for some answers. In the meantime we'll be trying the Ketogenic diet (supposed to work well with child seizures), and chiropractic visits. Also, it never hurts to ask... please keep Adrayn in your thoughts and prayers.
Mucho Love.
I have seen this movie, and smaller production of this play before... however, this time it resonated with me more than ever. My little Tiny Tim... my little Adrayn. I watched Tiny Tim at the dinner table with his family... he was such a positive soul , creating smiles all around. Then, again later as they carried his miniature casket through the town with sullen looks... and lastly, when Scrooge snapped out if his greedy, lonesome trance and they said Tiny Tim would live and grow to do many wonderful things... and I cried... no, I balled... my little Tiny Tim... my Adrayn.
Being a parent isn't an easy task... if I could go back in time and re-do it all, of course I would... but before doing so I would breathe the air deeply... the air, free of heartache... that only being a parent, no... only that loving someone with all that you are, can bring...
Yes, being a parent brings much joy, but the heartache is almost unbearable at times.... times like these.
Please love your little ones... let them know you love them endlessly... say it daily, hourly... I will never breathe air again like I once did, and that is okay, but if you can... please take a big breath for me.
We have an EEG on January 2nd... we hope for some answers. In the meantime we'll be trying the Ketogenic diet (supposed to work well with child seizures), and chiropractic visits. Also, it never hurts to ask... please keep Adrayn in your thoughts and prayers.
Mucho Love.
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