I am a lady with superstitions. I fear that by saying things are going well, that I may somehow have a super-power that throws it all off... So I will just say that things are better than they were pre-diet.
Pre-Diet: Typically Adrayn would have 1-2 Grand Mal Seizures every 4-5 days, and 0-100 "Drop" Seizures daily... 3 out of 4 weeks.
Post-Diet: His last Grand Mal episode was scary... he had 4 in a 24-hour period, that being said... it was on 6/21 (3 WEEKS ago!!!), and his drop seizures followed for less than a week. He will still have a day with a few drops, but NOTHING like it was!
It's odd... walking around, feeling more freedom from the beast that is Epilepsy. By no means am I breathing freely, but I am much more relaxed... and boy am I getting more done.
To somehow put into words what it is to find out that your child has Epilepsy... well... I don't know if I can do it justice. I guess I felt trapped... sitting by my child, hip to hip for the last 6 months. I didn't want him to face this alone, so I sacrificed myself. Sleep, nutrition, sanity... you name it. Not too bright, but I guess I'm learning as I go, and let's face it... the pool incident last summer has shaken me to my CORE and I haven't been able to let him go too far since. I am working on it..... and will go further down the rabbit hole once I can step back and take it all in.
I must admit that Pre-Epilepsy I would have more "I'm tired" days, and "I'll do it tomorrow"... well, no more! EVERY day is a question mark, so when we're on a good streak I GET SHIT DONE! I am super woman... and after everything that I have faced the past 365 days I am seeing that I CAN do more than I had ever imagined!
With the loving support of my husband, I can make time to love my family, measure and concoct special meals 3X a day for my son, nurse and cuddle my little baby girl, shop, clean, have dates with my step kids, AND run a business!!! What? Yes! Can I get an AMEN!?!
Adrayn has shown me so much about myself this past year... mainly, that I am MUCH more capable that I had ever dreamed.
So, in the last 365 days I have GAINED 500+ gray hairs, and LOST about 30 pounds. Not the best way to lose those extra baby pounds, but I don't get too hard on myself these days.
Thank you Adrayn... If this never happened to you, I would never have seen this strength and beauty within. I would have never known how much support I have from ALL facets... (Babysitting, video monitors, car repairs, neighbors hugs, and California 'goodness'), we are blessed....soooo blessed.
We. ALL. are.
Take this time.. this very moment to realize how amazing you are. I was blind, and then Adrayn showed me... maybe he will show you too.
Pre-Diet: Typically Adrayn would have 1-2 Grand Mal Seizures every 4-5 days, and 0-100 "Drop" Seizures daily... 3 out of 4 weeks.
Post-Diet: His last Grand Mal episode was scary... he had 4 in a 24-hour period, that being said... it was on 6/21 (3 WEEKS ago!!!), and his drop seizures followed for less than a week. He will still have a day with a few drops, but NOTHING like it was!
It's odd... walking around, feeling more freedom from the beast that is Epilepsy. By no means am I breathing freely, but I am much more relaxed... and boy am I getting more done.
To somehow put into words what it is to find out that your child has Epilepsy... well... I don't know if I can do it justice. I guess I felt trapped... sitting by my child, hip to hip for the last 6 months. I didn't want him to face this alone, so I sacrificed myself. Sleep, nutrition, sanity... you name it. Not too bright, but I guess I'm learning as I go, and let's face it... the pool incident last summer has shaken me to my CORE and I haven't been able to let him go too far since. I am working on it..... and will go further down the rabbit hole once I can step back and take it all in.
I must admit that Pre-Epilepsy I would have more "I'm tired" days, and "I'll do it tomorrow"... well, no more! EVERY day is a question mark, so when we're on a good streak I GET SHIT DONE! I am super woman... and after everything that I have faced the past 365 days I am seeing that I CAN do more than I had ever imagined!
With the loving support of my husband, I can make time to love my family, measure and concoct special meals 3X a day for my son, nurse and cuddle my little baby girl, shop, clean, have dates with my step kids, AND run a business!!! What? Yes! Can I get an AMEN!?!
Adrayn has shown me so much about myself this past year... mainly, that I am MUCH more capable that I had ever dreamed.
So, in the last 365 days I have GAINED 500+ gray hairs, and LOST about 30 pounds. Not the best way to lose those extra baby pounds, but I don't get too hard on myself these days.
Thank you Adrayn... If this never happened to you, I would never have seen this strength and beauty within. I would have never known how much support I have from ALL facets... (Babysitting, video monitors, car repairs, neighbors hugs, and California 'goodness'), we are blessed....soooo blessed.
We. ALL. are.
Take this time.. this very moment to realize how amazing you are. I was blind, and then Adrayn showed me... maybe he will show you too.
Mucho Love!
Beautiful!
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